Join Us in the Fight Against Renal Medullary Carcinoma (RMC) and Help Make a Difference in the Lives of Those Affected
Together We Can Put Eyes on This Stealthy Cancer
AN INTRODUCTION FROM OUR PRESIDENT
Hello, I’m Elvoice McCain, III; and that is me "on top of the world", in April 2022. I had no idea what was brewing inside of my body at that time. Four months later, I found out.
My journey dealing with RMC, thus far, has shown me a lot that I am thankful for. Things we tend to take for granted or seem to overlook, when everything is going well… like a family support system in and/or outside of home, having insurance, knowing a medical team that keeps you educated, being able to walk, being free of pain, and a number of other things (which I will speak about in the numerous blog postings) are now very present in my daily thoughts. I am truly thankful and blessed to have these things. But, I do realize that not all of these blessings are available to everyone. Not everyone has someone encouraging them to continue fighting when it seems like you can’t go on. Not everyone is financially able to handle copays for doctor's visits or pay for imaging, testing or biopsies. Not everyone is able to have a team of doctors who are able and willing to do what needs to be done to help fight this disease and give you the best chance at having the life you once called normal, or assist in helping extend your life at all. Where you live determines what kind of access to healthcare you get. I realize these hardships are real and affect a portion (possibly even a large portion) of individuals who may be suffering from RMC. That’s why I chose to start this non-profit.
When my team and I founded RMC & Me, these issues were its #1 focus; to assist:
those who are underinsured or uninsured.
those with financial needs.
with copays for doctor’s visits, blood tests, biopsies, and surgeries.
Most of all, we want to motivate those diagnosed with RMC to keep pushing, keep fighting, and keep being resilient. As I am writing this introduction, I am recovering from my 21st (yes, you read that correctly) round of chemo. Each session lasts roughly 5 to 5.5 hours. So, I can tell you, without a doubt, firsthand how best to navigate through some of the trials you may potentially come head on with. I tried to record this introduction into a video (and I may choose to eventually post it, as an example), but the post nasal drip and sniffing prevented me from doing that, so I am typing it instead. In the coming weeks and months I will share more of my experience, introduce you all to the RMC & Me team and inform everyone of upcoming community events aimed at spreading the word about RMC, what symptoms to look for, the importance of knowing your sickle-cell trait status, and the effects of the sickle-cell trait.
RMC & Me is an organization dedicated to bridging information and activity to find a CURE for Renal Medullary Carcinoma (RMC).
Our goals are to educate the community; advocate for those having symptoms associated with kidney cancer; assist uninsured and under-insured people with the costs of diagnostic imaging, blood testing, doctors' visit's fees, and biopsies; and motivate people confirmed to have RMC to accept treatment and fight.
Our mission is to unite researchers, healthcare professionals, and patients in the fight against this rare and aggressive form of kidney cancer; BEFORE it reaches the stage at which the organization's president found out about his diagnosis (Stage IV).
We are a volunteer based organization, which means our board members volunteer their time to our organization. Approximately 90% of your donation is used for assisting our guests. A small portion goes towards getting a diagnoses for their illness. If their illness is RMC, your donation will be used to pay fees associated with research efforts and treating the illness. More eyes on RMC cases equals more research in the quest to find a cure. 10% of your donation will be used to pay fees associated with operational costs.
Your donation and continued support, whether in the form of a donation, spreading the word about RMC, or volunteering at an event is greatly appreciated!
We provide a wide range of services aimed at:
informing the community via awareness events, meet-and-greets, and educational resources.
investigating suspected cases via laboratory and diagnostic testing.
connecting those confirmed to have RMC to specialists and researchers.
supporting those going through treatment for RMC via fundraising and psychological services.
providing transportation to appointments.
providing nutritional support during treatment.
Join us and together, we can make a difference in the lives of those affected by RMC.
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